For parents who’d like to explore support groups, there are various ways to do so:
#1 You can fill in the (sharing your eczema story) form and indicate in the last question your willingness to join the support group and I’d put you in the private google group “Best Parent for E Child”. Alternatively, you can email me at [email protected]
#2 The second last question in the form is asking if you are ok with the information you filled in to be published as an interview. The purpose of that is to let other parents who come to this blog know you (and you know them when they do the same) and to build a community of parents who support each other. You can see under the comments section below for how a published interview looks, and your email will not be disclosed.
Over the past 6 years, the comments on this page themselves have come to serve as a source of support for parents – parents read what the best moments and challenging times are like for other families, and feel less alone in their struggle.
#3 I’m involved with Singapore National Skin Centre’s quarterly support group sharing sessions; please get in touch with me if you’d like to be placed on its mailing list! Update in 2021: Activities have been put on hold due to Covid-19 pandemic.
Here is a collection of devotionals that I have created in the hope that it will provide a little comfort and joy for parents caring for their eczema child.
Top 10 tricks to keep baby’s fingers busy
Top 10 reasons why parents with eczema child have a tougher time
255 replies on “Support Group”
Meet a New Mom! – Jacquie
Child’s Name – Daniel
Diagnosed with eczema – 19/8/2010
Best parenting moment & Greatest challenge – Best- D having a bath for the first time without crying
Greatest Challenge- Severe Eczema (and he has multiple food allergies/epipen)
Thanks Jamie for joining me here 🙂 Have you seen the Teen Eczema series with Dr Lynn Chiam below:
http://eczemablues.com/2012/09/teen-eczema-qa-with-dr-lynn-chiam-puberty/
She mentioned that teen girls tend to be more irritated by clothes and shoes when reach puberty. And anything to do with shaving and skincare she’s using? http://eczemablues.com/2012/09/teen-eczema-qa-with-dr-lynn-chiam-skincare-shaving/
And sweat during sports http://eczemablues.com/2012/09/teen-eczema-qa-with-dr-lynn-chiam-sweat-sports/
The other condition is urticaria http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001848/
Hopefully, her condition be ok once it’s 2013 & your family can celebrate, sending hugs!
Mei
Meet a New Mom! – Jamie
Child’s Name – J
Diagnosed with eczema – 01/12/1999
Best parenting moment & Greatest challenge – my daughter has had asthma and skin problems since she was 2. she is now 15 and her body is freaking out. this has been going on for approx 4 months. at any time, her whole body will break out in hives, or rashes. benadryl and claritin help sometimes but not over a long period of time. she’s been using steroid creams for years. we really need some help. can you send us some info or advice? thank you
Hi mummies, I wanted to share this which I think is impt for all of us woth eczema kids. i went the Amazonia today n wanted my girl, who is 10mths old to try their playground. The receptionist greeted me politely n said its free for babies <1, then she asked if I hv socks. I said I do. She then looked at my girl n asked what happened. I said she has eczema (red patches on cheeks n some red marks on her hands as she scratches). She then looked at her palms (which was normal). She looked up and said solemnly "sorry its crowded today u wont want to go in". She repeated it 2x. I then asked if i can go in to take a look if I cant play.. She said i cannot bring my girl in. (But I just want to take a look!) And then guess what, I saw other toddlers queuing to go in! I can only say my girl has been discriminated against as the poorly informed receptionist thinks that eczema is contagious! Its alarming how she shut me off and went off to talk to other customers. Mummies, if u have kids with eczema or skin sensitivities, pls avoid Amazonia as they wont take u in ! Such blatant discrimination is sad when a kid with skin sensitivities is perfectly capable of playing in a playground without spreading it to anyone..
My friend said Happy Willow is a much better option. Pls take note everyone. I understand how distressing it is to take care of an eczema kid already so dont want u to face this kind of discrimination when u want ur kid to hv fun. 🙂
hi Mei, sorry pls let me know if its not appropriate to post here. I just hope other mummies dont have to go thru what I went thru! I was v sad when my girl was denied entry, it made me more determined to get her healed! thou its going to b a long long process.. 🙁
No worries, thanks for your sharing. Will take note not to go Amazonia and hugs for your girl 🙂
Meet a New Mom! – Deb
Child’s Name – Tyler & Luca
Best parenting moment & Greatest challenge – Best parenting moment…a full day itch free no wet dressings required…greatest challenge….dealing with 2 children scratching till bleeding night & day
Meet a New Mom! – LHWee
Child’s Name – JY
Diagnosed with eczema – 10/10/2011
Meet a New Mom! – Ruthy
Child’s Name – Zach
Diagnosed with eczema – 17/05/2009
Best parenting moment & Greatest challenge – I am cherishing every moment with my son..there is way more i am grateful for a beautiful person he is becoming than the challenges we had with eczema so far. although it is still a part of our lives, we are on the journey of getting the scratching and bleeding under control as he can ask for wet cloth or ice pack now when he started to itch again : )
I know! Totally understand about scratching at night, you can look through my 101 cartoons to see how many are about it!
Meet a New Mom! – Nani
Child’s Name – Hariz
Diagnosed with eczema – 30/04/2012
Best parenting moment & Greatest challenge – Best – when my son sleeps through the night without scratching
Greatest Challenge – when I woke up in the morning to find that he indeed HAD scratched while sleeping! AArrggghh…..
Meet a New Mom! – Ashley
Child’s Name – Avery
Diagnosed with eczema – 24/04/2007
Meet a New Mom! – Kimberly
Child’s Name – Michael
Diagnosed with eczema – 15/07/2011
Best parenting moment & Greatest challenge – My best parenting moment was when my boys were born, my greatest challenge is trying to help control my childs eczema, he got diagnosed over a year ago and nothing seems to help he is in pain and it breaks my heart that I cant make it go away.
Hi Kimberly,
Do you live in Singapore? There are quite a number of docs who specialized in children & eczema/dermatology/allergy/immunology.
Hope Michael’s eczema improves, take care!
Meet a New Mom! – Margaret
Child’s Name – Jacob
Diagnosed with eczema – 01/08/2011
Best parenting moment & Greatest challenge – Best moment is to watch them grow everyday, from only a baby to being able to crawl, walk and now run and jump around.
Greatest challenge was when Jacob was diagnosed with Molluscum contagiosum. As he has ezcema as well, the condition was worse as he could not stop scratching and spread the virus faster. It was a pain 6 months road to recovery. He is now fully recovered, but we are still battling eczema and his sensitive skin.
Meet a New Mom! – Anna
Child’s Name – Keagan
Diagnosed with eczema – 19/05/2008
Best parenting moment & Greatest challenge – Best: I can’t think of a single moment but it is every time he smiles from the heart.
Greatest challenge: when he scratches uncontrollably, cries in pain and I can’t do anything about it.
Meet a New Mom! – Ana
Child’s Name – Michael Max
Diagnosed with eczema – 01/02/2012
Best parenting moment & Greatest challenge – Best is when he is happy, smiling and playing with toys. Greatest challenge is trying to control the itchiness at 4am in the morning!
Hi Ana,
So sorry to hear that your boy has eczema herpeticum – I read up on this and written a post on it here.
http://eczemablues.com/2012/04/eczema-herpeticum-what-is-it-and-is-it-dangerous/
I hope that he doesn’t get repeated attacks, as I’ve read that the virus stays in the body and can be triggered again by fever/flu.
Praying for your little boy, it’s such a tough time – the 6-7 month old period to manage eczema.
Hugs & encouragement,
Mei
Hi, My name is Ana and our little boy has eczema since he was about 2 months old. He is now 7 months. Last month he was in the hospital for 7 days, he had HSV1, eczema herpeticum.
Meet a New Mom! – Karen
Child’s Name – Kleaven
Diagnosed with eczema – 17/07/2010
Meet a New Mom! – Rosalynn
Child’s Name – Sharlynn
Diagnosed with eczema – 26/09/2010
Best parenting moment & Greatest challenge – BEST parenting moment: Whenever she calls out to me and gives me a hug when i come home in the night.
GREATEST challange: Trying to stop her octopus hands from scratching everywhere. Scalp, armpits, rubbing of eyelids, hands, legs, feet, tummy, shoulder, basically everywhere…… =(
Meet a New Mom! – Alicia
Child’s Name – Ryan
Diagnosed with eczema – 01/06/2010
Best parenting moment & Greatest challenge – Surviving every day? 🙂
Meet a New Mom! – Teri
Child’s Name – Glerick
Best parenting moment & Greatest challenge – I’m not too sure on my best parenting moment. But my greatest challenge is to handle broken skin frequently, preventing infection on my son, trying to help heal his skin as fast as I can.